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英国志愿者:我身边的精神病人(上)
http://www.sina.com.cn 2002/05/22 11:02  北京青年报

  (本文作者为英国VSO志愿者,现在湖南省任教)

  Many people prefer not to talk about mental illness - it's not a pleasant subject, after all. Most people think it doesn't concern them. I used to be one of them. But that was before my younger brother spent two years in and out of mental hospitals in England. My brother was only 16 the first time he was admitted to hospital.

  No one knows what made him ill:so far as we could see, his illness came from out of nowhere. Now I know, however, that the first signs of mental illness often turn up in both boys and girls in their teens.

  In the beginning I found it hard to believe he would be in hospital for long. Every time I went to visit him I expected the doctors to say that it was all a mistake, that he could go home with us. They never did. In time I got used to the idea of his being in hospital. The longer he was there, the further away he drifted from reality and from us. I began to fear that the day would come when he no longer knew who I was or why I was visiting.

  One memory that still disturbs me is of going to see him for the first time in hospital.It was Christmas Day in 1999. I had come home from university to spend time with my family and see my friends.Two days before Christmas I had attended a party to getsintosthe festive spirit.When I came home from a friend's house on Christmas Eve, I saw my mother's face and knew at once that something terrible had happened. My parents told me my brother had had to go back to hospital.The news made me feel as if I had a stone in my stomach. 'Haven't we all been through this once before?' I asked myself.

  On Christmas Day we drove to the hospital one and a half hours away. We sat in the doctor's office as she explained in very difficult technical terminology things I didn't understand. She could tell me the names of the drugs and sedatives my brother had been given but she couldn't tell me what I really wanted to know: Why? Why him? Why now?

  I wept as I listened to the doctors discuss him. Finally they told me that if I didn't stop crying I couldn't see my brother, as they didn't want me to upset him. I swallowed hard and promised not to cry.

  Guided down a long, cold corridor, I was only allowed to look at him through the window in the door of his room. There he lay, asleep in bed, heavily sedated.He wouldn't wake up for a few days. I stood at his window and watched him sleep, thinking how much I loved him.

  I wanted to give him some Christmas presents when he woke up, something to put a little normality backsintoshis life. I had brought him some jumping beans, children's toys shaped like beans.They have small weights inside them; when you put them on a flat surface they move by themselves and seem alive. I brought them to the hospital but the doctors wouldn't let me give them to him.They were afraid he would mistake them for medicinal tablets and try to eat them! This made me angry: I felt that the doctors were assuming too much control over his life. It took me a long time to accept that this was part of their job.

  Over the next 6 months I saw him in the hospital many times. His mental state varied:sometimes he was happy, sometimes sad, and at other times he was so confused I didn't understand him at all. I was frightened when I couldn't understand him because I didn't want him to know that he was making no sense. Deep down, I thought, all he wants is for people to understand him. And all I wanted was to understand him.

  Most of the time his eyes were swollen and his behaviour was subdued, as a result of the medication he was on. I hated seeing him like this, with no light in his eyes, indifferent to his surroundings. I was running out of hope. Hope is the only thing that can help get you through such dark days.One night I telephoned the ward to say goodnight to him, as I often did. On this occasion, which he no longer remembers, all we did was say 'I love you!' to each other again and again. It was the sweetest moment in all the misery and anger and it gave me the hope I needed.

  (to be continued)

英国志愿者:我身边的精神病人(上)

  很多人都不愿意谈及精神病,毕竟,这不是一个令人愉快的话题。多数人认为精神病与自己无关,我以前也常常这样想,但那是我弟弟进进出出英格兰的数家精神病院达两年之久之前的想法了。我弟弟第一次住进精神病院时才刚16岁。

  谁都不知道是什么原因使他患上了精神病,就目前我们所知,他的病因无从查起,但我知道,精神病的最初征候常常出现在男孩女孩十几岁的时候。

  最初,我真是难以相信他将在医院住很长时间。每一次我去看望他,都期望医生说这一切都是误诊,他可以和我们一起回家了。但医生从来没有这么说过,随着时间的推移,我才习惯了他住在医院里这一情景。他在医院住得越长,离开现实生活、离开我们就越远,我开始害怕有一天他不再认识我,不再知道我为什么要去看他。

  至今仍然让我想起来就难受的一幕是第一次去医院看他。那是1999年的圣诞节,我从就读的大学回家过节并看望朋友。就在圣诞节之前的两天我参加了一次朋友聚会,感受到了节日气氛。圣诞节前夜,我从朋友家回到自己的家,一见妈妈的脸色,就立刻知道有什么可怕的事情发生了。父母告诉我,弟弟已经不得不回医院了,这个消息让我觉得心中好似压了一块石头,“以前的那场噩梦还没有过去吗?”我问自己。

  圣诞节那天,我们驱车一个半小时来到医院。我们坐在医生的办公室里,医生用我理解不了的难懂的术语解释着弟弟的病情。她能够告诉我弟弟服用的药物和镇静剂的名称,但却不能告诉我真正想知道的:这到底是为什么?为什么这会发生在弟弟身上?为什么现在发生了这样的事情?

  在听医生们讨论弟弟的病情时,我一直在哭。最后,他们告诉我如果我不能停止哭泣,就不能见弟弟,因为他们不想让我惹弟弟不高兴。我强忍泪水,答应不再哭了。

  有人领着我们走过又长又冷的楼道,只允许我隔着弟弟病房的窗户看他。他躺在床上,睡着了。他服用了大量的镇静剂,几天之内都不会醒来。我在窗边站着,看着他睡,想着我是多么爱他。

  我想在他醒来后送给他一些圣诞礼物,一些能带给他一点点正常生活的东西。我给他买了跳豆——一种形状像豆子的儿童玩具,跳豆的里面有很小的金属重物,当你把它们放在平地上,它们自己就会动起来,好像是活的一样。我把跳豆带到医院里,但医生不让我把它交给弟弟,他们怕弟弟误以为是药片而吃下去,这让我非常愤怒:我觉得医生对弟弟的生活控制得太过分了。很久以后我才认可了他们这样做是出于职责。

  在接下来的6个月当中,我在医院里见到弟弟很多次。他的精神状态变化无常:有时高兴,有时悲伤,有时糊涂得我一点都不明白他说的是什么。当我理解不了时我就很害怕,因为我不想让他知道他是在语无伦次。我想,在他内心深处,他所向往的就是让人们能够理解他,而我想做的一切就是理解他。

  大部分时光他的眼睛肿胀,闷闷不乐,这是服药的结果。我真是不愿意见到他这个样子,两眼无光,对周围的一切都很漠然。我几乎丧失了希望,而希望则是唯一能帮你度过这种黑暗日子的力量。一天晚上,像往常一样,我把电话打到病房向他道晚安。在电话中我们一遍遍地向对方说“我爱你”,而这个情形他已经不记得了,但这却是我经历了所有的痛苦和愤怒之后最甜蜜的时刻,它也给予了我所需要的希望。(待续)




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