网友求助:救救我女儿幼小的生命
http://www.sina.com.cn 2000年8月18日 新浪生活
我的女儿名叫李娇瑶,今年9岁,生性活泼可爱,但不幸的是与1999年2月24日因皮肤散在出血点伴鼻出血20余天到河北廊坊市血液中心就诊,经化验血常规、骨髓有核细胞形态学及免疫学分型等检查,诊断为:急性非淋性细胞白血病—单核细胞型(ANLL—M5),后又经天津血研所确诊为M2,最后,在廊坊血液中心予以HAE(高三尖杉酯硷、阿糖肥苷、足叶正戒)方案化疗2个疗程获完全缓解,之后,分别予以HAE方案2疗程和DA方案(柔红霉素、阿糖肥苷)、MA方案(米托蒽醌)、AA方案(阿克拉霉素)及HD—Arac(大剂量阿糖肥苷)方案各一疗程强化治疗,同时配合了中医药治疗。
于1999年11月22日复查,骨髓象显示:增生活跃,原幼单16%,提示疾病复发,再次予以DA方案化疗1个疗程获第二次完全缓解,又予以HD—Arac化疗后又复发。
于2000年2月—6月再次予以EAC(足叶正戒、阿糖肥苷、环磷酰胺)、MAE、DA、VIAAP(长春新硷、去甲氧柔红霉素、甲氨喋呤、泼尼松)等方案化疗,未达完全缓解,骨髓检查显示原幼单核细胞在24%—54%,每次化疗后外周血WBC均可达0.4—0.8×109/L,骨髓抑制期经过尚顺利。
现仅服中药治疗,血象在WBC:2.3×109/L,HB:9.7×109/L,临床无发热,仅牙龈少量渗血,饮食、睡眠及二便均可。
特向社会有识之士寻求新的治疗方法,帮助挽救我女儿幼小的生命,大恩永不能忘!(2000年8月15日)。
附英语译文,希望好心人能予以转载,寻求国际社会的帮助,谢谢!。
有消息请作如下联系:
联系人:李淑玲联系电话:0335—3052000 0335--8811109
联系地址:河北省秦皇岛市电信局
电子信箱:qhdxdyh@public.qhptt.he.cn或shuling@0335.net
附:
Please Help Me
My name is Lijiaoyao,a chinese child ,9 years old,and I was born in Qin- HuangDao,a beautiful seaside city,HeBei proince of China.Unfortunately,becase of dermal purpura and nasal cavit bleeding again and again 20 days,I was hospitalized on Feb.24 1999,and according my check of blood,bonemarrow and other immunologic test,acute monocytic leukemia was diagnosed (ANLL-M5).After two course of chemical therapy(drug including homoharrintoninum,Ara-c,and etoposidum,was called HAE scheme) I acquired complete remisson(CR).
Then I was taken HAE scheme twice, DA(daumorubicinum,Ara-c), MA(mitoxantrone,Ara-c), AA(aclacinomycinum,Ara-c) and middle-dose Ara-c(MD-Arac) respectively one course.On Mov.22th 1999,my disease relased,and monocytic blasts were 16% in my bonemarrow.I wastreated with DA scheme one course my disease acquired second CR.After that I was treated with MD-Ara-c,EAC(etoposidum,Ara-c,cytoxan) scheme respectively one course. On Fev.22th 2000,monocytic blasts rose to 28% in my bonemarrow,and my disease relapsed again,This time MEA, DA, VIAMP(VCR.IDR,Ara-c,Mitoxantrone,prednisone) scheme was taken,and soup of Chinese herbal was taken orally by 4-5months.My blast cell of bone marrow was 24%-25%.Although every time the lowest count of my peripheral white blood cells were 0.4×109/L—0.8×109/L,and accompanied with infection and fever,I was not achieved CR.
Now I have anemia and bleeding, so I am seeking an effective therapy and desir your help.Please make contact with my mother if you have any message .Name:LishulingAddress:Telecom company of QinHuangDao city in Hebei ChinaTelNo.:0086-0335-3052000 0086-0335-8811109 E-mail: qhdxdyh@public.qhptt.he.cnorshuling@0335.net
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