Six-year-old Virsaviya Borun has been beating the odds her entire life, having been born with her heart and intestines outside her chest and abdomen.
Virsaviya6岁了，自出生时她的心脏和肠子就一直在体外生长，击毁了她整个人生所有的可能性。
Virsaviya, a native of Russia who recently moved to South Florida with her mother, suffers from multiple birth defects caused by Pentalogy of Cantrell - a rare congenital condition that occurs in estimated 5.5 in one million live births.
Virsaviya是一个俄罗斯姑娘，因患坎特雷尔五联症导致的天生畸形——这是一种非常罕见的先天性疾病，据估计发病率为一百万分之5.5.
Virsaviya’s heart, which is about the size of a fist, could be seen beating against her abdominal area, protected only by a thin layer of skin.
Virsaviya的心脏有拳头大小，可以看到只有一层薄薄的皮肤保护，在腹腔外跳动着。
Her intestines are also outside her body and she has no abdominal muscles or a diaphragm.
她的肠子也在体外，没有腹肌，也没有隔膜。
When I was pregnant, the doctor said she will not survive, that she is going to die,’ the girl’s mother, Dari Borun, told NBC Miami.
她的妈妈，Dari Borun告诉迈阿密NBC，“在我怀孕时，医生就说她很难活下来，可能死去。”
Six years later, Virsaviya, who also goes by the biblical name Bathsheba, is a bright and lively girl who enjoys drawing ponies, attends art classes and loves dancing to Beyonce’s songs.
6年后，Virsaviya还活着，她还有一个从圣经里来的名字Bathsheba。她是一个愉快活泼的小姑娘，喜欢画小马，上艺术课，以及随着美国歌手碧昂丝的歌曲起舞。
In early 2015, Ms Borun, who has been raising Virsaviya on her own, found a doctor at Boston’s Children’s Hospital willing to treat her rare ailment.
早在2015年初，独自带着Virsaviya长大的妈妈Borun就曾找到波士顿儿童医院的一名医生，期待能帮忙治疗小姑娘罕见的病症。
Pentalogy of Cantrell often requires surgery, depending on the severity of the patient’s defects, and could be fatal if left untreated.
坎特雷尔五联症通常需要做外科手术，取决于患者症状的严重程度，如果放任不管，随时都可能死亡。
But the medical team in Boston said Virsaviya cannot undergo surgery at the moment because she has high blood pressure in her pulmonary aorta.
然而，波士顿医院的专家团队说，由于Virsaviya的肺部有高血压，当前身体状况还不允许进行手术。
The girl will be evaluated again in two years to determine if it would be safe for her to undergo an operation.
她将继续被观察两年以决定其身体状况是否能承受手术。
Ms Borun has appealed to the public for help, asking for donations to cover her daughter’s medical bills and basic living expenses, saying she has very limited means, being a single mother of a special-needs child with no other family in the US.
她的妈妈向公众寻求帮助，希望筹得捐款来支付女儿的医院费和基本生活开支。她表示，自己生活非常拮据，是一个单身妈妈，还得照顾有特殊需要的孩子，在美国又没有亲朋好友。
The mother and daughter have recently moved from Boston to Hollywood, Florida, because Virsaviya is unable to live in a cold climate.
这对母女最近从波士顿搬到了佛罗里达的好莱坞。
In sunny Florida, her mother says the 6-year-old’s heart feels warm and she does not get sick as often as before.
在阳光和煦的佛罗里达，妈妈感到Virsaviya 的心脏很温暖，她也不像过去那样总是生病了。
Since coming to the US to seek medical treatment last winter, Virsaviya has been learning English, although she does not currently attend school because of her condition.
自从去年10月搬到美国来寻求治疗，Virsaviya就开始学习英语，尽管由于她的身体状况，她当前并没有上学。
While awaiting treatment, Virsaviya fills her days with art, music and dance. The mother and daughter also rely on their faith to keep them strong in the face of adversity.
在等待治疗的日子里，virsaviya每天的生活被绘画、音乐和舞蹈所充实。这对母女靠着坚定的信念，坚强面对每天如履薄冰的日子。
‘I know why I have heart outside,’ says the 6-year-old knowingly. ‘Because Jesus want [sic] to show he can make special things like me.’
这位6岁的小姑娘机智的说，“我知道为什么我的心长在外面，因为耶稣希望让大家知道，他能创造出像我这样特别的杰作！”
The family have launched a fundraising page on Youcaring.com titled Bathsheba’s Heart. So far they have raised $11,790 with a goal of $20,000.
他们家已经在Youcaring.com网站上发起了名为“Bathsheba”的捐款，目前他们已经筹集了11790美元，他们的目标是20000美元。
